I have so much information to process right now and decisions to make. Most of the details below are to help me think things through -- there will be a brief summary at the end if you want to skip it. :)
I think bullets will do it best:
- We really like the new RE (gonna call him Dr. Smiles). He has a much better bedside manner than my old RE (renaming her Dr. Six-times -- Dr. Six) and seems to genuinely care about what he's doing. Like I think he might actually remember who I am from appointment to appointment kind of "caring." On first impression, the old office is fancier (i.e. more nicely decorated) and seems more "official" but the new one seems much more personal and the doctor is more involved in everything. (I think he knows how his office looks in comparison to the other one because he mentioned how he is building a new space across the street but that his office is state of the art. I think he almost feels like he has to defend himself against it.) He is private practice while the other office is part of a school. And, I honestly don't care what it looks like as long as it works! I think his office is busier, though, and has far more cycles going on. He, obviously, knows the other doctors (it's not that big of a town), and has mostly good things to say about them, but I think he understood why we were there.
- He seemed pretty surprised at how casually we'd been treated at the old office. He felt like there were several red flags that were popping up in my file that showed that something was up and that we should be moving forward more aggressively than we have been so far. He was surprised that Dr. Six wasn't more aggressive when she did the hysteroscopy last year and was disappointed that she didn't investigate more to see what was happening with my left tube. He asked with a quizzical look "So, this last beta in July is still from the pregnancy in April? They just tested until it was zero? And then just let you go? Huh." Yeah, that's what I thought, too.
- He started off essentially saying that looking at my chart he thinks there is a decent chance that I have some degree of endo. Which is interesting. He thinks it could be the cause of my intense mid cycle pain and pain during sex. When I've asked other doctors about this (basically every OB/Gyn or RE I've had since I became sexually active), they've brushed it off as ovulation pain that I must just be more sensitive to. Yes, I know it is due to ovulation, but it seems like it shouldn't be so painful that it can hurt to walk when I'm about to ovulate -- even when I'm not on fertility drugs.
- He did an u/s and talked a lot about what he was seeing. First off, can I tell you how much I appreciated that he did the scan himself and showed me what he was seeing and what it meant while he was doing it? I liked the u/s techs at the old RE's but I felt like I never knew what was happening. The tech would do a scan, I'd go sit in a room, the nurse would come to me with a report, some time later that day the nurse would show the scan to Dr. Six and sometimes I'd get a "correcting" phone call in the evening. I realize that they're all very busy, but I never felt like I had any idea what was going on. And, obviously, Dr. Smiles won't always be able to spend that much time with us, but I feel like he'll always be willing to talk with me about what we're looking at. He recognized that my DH and I are intelligent, well-educated scientists and that we can be trusted to understand medical terminology and statistics. (And, even if we weren't, I think anyone would like to be treated like they deserve to know what is going on!)
- He found a decent sized fibroid that he says is in a "gray" area -- not a definite issue but could be. He said he was surprised at the number/size of follies I had while having an extremely thin uterine lining (would have expected there to be more estrogen present) and wants to do some blood work. He's concerned about my uterine lining in general and wonders if there is something hormonal going on.
- He took lots of blood for both hormone levels and vitamin deficiencies, etc. (Woohoo for someone actually thinking data might be helpful when making decisions without my having to ask...imagine that.) Hopefully results will be in tomorrow.
- He said that my DH's sperm count/quality is in the upper 3% of patients he has seen and that he should keep doing what he's been doing. He said he seems to have contributed enough sperm in our previous 4 IUIs for 20 women. (At least one of us is "excellent.") He said "you're having sex with a very fertile man -- something is wrong if you aren't conceiving."
- He doesn't seem too concerned about the miscarriage and is focusing on the positive side of it. I am, too, at this point... at least I'm trying to.
- He's recommending injectable IUIs. ("High octane" as he called them.) Surprisingly, I think I'm OK going that way. I felt more comfortable with his recommendation than I have with the info we've gotten from Dr. Six in the past. It seemed like he thought it through and thought it would give us a good chance. And, he knows the multiples risk and will be cognizant of that throughout. But, he also seems to have a reasonable idea of how long we should try it before moving on. And, if we were to try IVF, we'd probably need to wait until the summer, anyway, so we might as well try this, now.
- He's recommending a lap because he wants to see what is happening with my tubes and investigate the possibility of endo. He seemed less certain of the endo by the time he'd finished the examination, but still suspect. I'm not sure what we're going to do there. If we can get our insurance to understand that it is for pain I will likely do it -- before we try any treatments because after that I'm certain they won't process it. But, we've had problems with my insurance before, so I'm not sure if it will happen. For one thing, we've learned that they seem to refuse to pre-approve anything but might suddenly "un-approve" it after the fact. (There's also a possibility that our insurance company is about to drop the hospital he works for -- we're really hoping that a last minute negotiation keeps that from happening.) We can't afford to put all our money into a surgery that could very well find nothing and then have nothing left over for treatments. I'm not sure what to do. I'm both afraid to do it and afraid not to do it. (I was in this exact position about 14 months ago...)
- I like the staff -- the nurse was really nice and did an excellent job of drawing blood. The rest of the staff seems really friendly, too.
- There was a woman in another room that we could hear singing along to her iPod as she waited for something and Dr. Smiles and the nurse were both just really sweet about it. They said "She's really happy and I hope that vibe gets to her ovaries, too." I don't know, it just made the whole office seem really comfortable and made us all grin.
- Did I get all my questions answered? No. Despite having them written down in front of me, I still managed not to ask some of them. Yeesh. I got so taken in by the discussions we were having with him that I got distracted and didn't manage to ask some of it. But, I'll be talking to them soon and asking some of what I forgot. (Specifics about costs, pregnancy loss tests/differences "next time.")
Interesting side note -- his wife had five m/c in between their son and her current pregnancy (over 20 weeks after their fourth or fifth IVF -- he has all her u/s pictures on a board in his office). I'm not sure if this makes him *too* understanding about this process or if it is a good thing. I think it is a good thing.
I also realized I've come to a decision -- I'm willing to throw everything we can at this for one more year. After that, I need us to move on with our lives one way or another. So, it's time to be aggressive.
So, in summary:
- We are happily switching to Dr. Smiles.
- We're waiting for some bloodwork.
- We're likely going to start doing injectable IUI cycles for a few tries.
- We may or may not be doing a lap -- any thoughts out there?
I am so glad everything went well today --- sounds like you received a lot of good information and have made some decisions you are happy with..that is so great! I wish you the best with deciding on the LAP. Hoping that iui/injects will work its magic for you like it did for me = ) I look foward to hearing more as you move forward!!
ReplyDeleteWow this all sounds great! I love how interested he is, and how you feel so much better with Dr. Smiles than Six! On the lap - I don't know. If he thinks there might be some endo, it may be worth it, but definitely try to get a pre-approval in writing!
ReplyDeleteI particularly like the decision to throw everything at it for one year and then move on. This shows some conviction - I like it!
Yay, the new doc sounds fantastic, and that makes such a difference! I think it's great that he's been thru this himself--my first RE (who moved away or else he would still be my one & only!) & his wife conceived both their kids thru IVF and it made such a difference in terms of empathy as compared to many of the other docs I've seen. I love the idea of going for it this year, but also having a time limit on it--that sounds really great to me personally. It sounds like this doc is going to make it happen! Also congrats on your very fertile husband ;)
ReplyDeleteDr Smiles reminds me a lot of my Dr Phil. We totally skipped clomid due to my lining being too thin and went right into protocol (injectibles) that he thought would work the best and the fastest. No reason to monkey around. Glad you've found someone new. :) And glad for the renewed confidence, i think that will help a lot too!
ReplyDeleteSounds like the meeting with Dr Smiles was great! Love that you now have all this information and have a plan for the year!
ReplyDeleteI like Dr Smiles, he sounds a lot like my RE who I love :)
ReplyDeleteThis is just my opinion, but since we have a similar clause for stopping at some point (x - still trying to find it lol) I definitely think you should get the lap. Even if it costs you. Because if you're done in a year, and you still don't have a baby (I hope not!) or one on the way... you want to be able to stop knowing that you explored every likely issue.
what an excellent post -- even from just reading your words i can totally feel your confidence and happiness in this man and his office. top stuff!
ReplyDeleteif it were me, i would do the lap. at the end of the day, money is money and it comes in just as it goes out (i know that that may sound easier said than done..) but that's just my opinion. if you have the lap done, you've covered all your bases in this game.
jut think -- at this stage of the game, look who you now have batting for you on your team! you're onto a winner, i can feel it!
you go, girl!!
Im so glad you had such a great experience:) It sounds like he is ready to attack not just sit back which is good...I would say on the Lap that if you do plan to do IUI's and there is an issue it would definately help it but if you are going right to IVF I dont think the Lap is necessary...My sister in law got pregnant with her first baby 1 month after trying...then two years later they tried for number two and after 2 years of trying and nothing went to their OB...tried a few clomid cycles no luck so the OB suggested a Lap...She did it and discovered she had developed mild Endo and removed some around the ovary/tubes/bladder....and low and behold the next month she did clomid again and she got pregnant so it helped her:)
ReplyDeleteI'm liking this Dr. Smiles! I have no insight to offer about laps. I hope you come to a decision that feels just right soon.
ReplyDeleteExcited to hear that the appointment went so well! A lot of information was covered, which is sometimes the hardest part - knowing what the next steps should be. I think your plan sounds great! I think I would be hesitant to spend the money for a lap.
ReplyDeleteI love everything about Dr. Smiles! but what I love the most, is what he has given back to you ... lot's of positive thoughts. I love to read your post. I am excited for you, Girl!
ReplyDeleteAs for the lap, if he has any concerns about the tubes and if you guys decide by the inject IUIs, it might be the best to check things out to be on the safe side (you know my story). On the other side, if the lap together with the IUI's increases the cost up to the range of a minimal IVF ... well, I would think about that. Maybe after your insurance-homework you may discuss the cost-benefit of the lap with the doctor again. This is my two cents. Decisions, decisions ... so hard to make them!
Fingers crossed for good test results and lot's of questions answered by them!
Yay! for finding Dr. Smiles:)
I'm so glad to hear your appointment with Dr. Smiles went so well. Sounds like you've got a good plan in place. As always, I have everything crossed for your success!!
ReplyDeleteSo, for what it's worth, I think that he understands what you go through. It sounds like you are making a great decision, but I am useless on the lap question. I am so excited for this new doc!
ReplyDeleteThis sounds wonderful! So glad you found someone who feels right. Can a doctor really be too understanding? I love that he knows where you're coming from. Hooray on all counts! Sorry not to have any advice about the lap.
ReplyDeleteI like Dr. Smiles already and his plan sounds great! Good luck with the lap decision. I agree that you should check on whether or not your insurance might pay for it. It really annoys me that they could deny you! My RE had speculated that I might have endo and recommended a LAP if we were not willing to do IVF. Can't wait to see what you decide to go with!! Did he say how many IUIs you should try?
ReplyDeleteHi there, I would say it may be a good idea to have a lap. I had one done and my specialist descovered endo, so it's always good for them to have a nosey and see whats going on and can fix it.
ReplyDeleteWhat a great appointment, it makes such a difference to have a good doctor. I had a lap and it wasn't bad, it can give you piece of mind.
ReplyDeleteI am excited for you! Here is to progress and healthy babies in 2011!
xoxxo
I am so, so happy that you like Dr Smiles! Feeling more confident and comfortable with you doc is a great thing. And lets face it, your old doc wasn't getting the job done so it's time for a change =)
ReplyDeleteOn the LAP topic...would he want to remove the fibroid or is it for exploritory purposes only? If the fibroid isn't in a place that is interfering with implantation I've read that leaving them be is best. I got two removed because they were in a questionable location. If you get it removed changes are much higher you would need a c-section with a pregnancy (just so you know...I had no idea). If the LAP is just for exploration and you'd be moving to IVF soon I might skip it since you get around any possible endo by doing IVF.
I felt the same way as you...I was willing to be the worlds biggest lab rat, pin cushion, etc. for a certain period of time and then I was going to have to wash my hands of it. I'm excited that you're pulling out all the stops and I have a very good feeling 2011 is the year =)
This is really exciting. It sounds like he's going to be a good fit!
ReplyDeleteYay for Dr. Smiles. It is such a relief to find a dr that you like. My RE and his partner also went through IF.
ReplyDeleteI have read about some couples weighing the cost of having a lap and finding endo and then moving on to IVF versus not having the lap, saving that money and putting it toward IVF or other treatment. If you could get it covered by your insurance it might be worth it, if not, just moving forward with treatments might make more economic sense. However, the pain you experience at ovulation is concerning and it sounds like it would be reassuring to get some answers. Tough decisions.
Glad you found a doctor you clicked with. As Kristi of Nick & Kristi said, if you're doing a few IUI cycles, I'd do the lap. If you go to IVF, then endo doesn't matter, so you could choose whether or not you want to find out about it (e.g. for future knowledge/management).
ReplyDeleteJust read this post after reading about today's update to get more info on fibroids. I do not have any that are inside the uterus, but I do have them...and wondering if they could be the problem. But loved this post for discussing how your 2nd opinion visit went and making the decision to switch to Dr. Smiles. Thank you!
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