Hi everyone!
Thanks for all your comments on my "blah" post. I'm still in a sort of "blah" mode, but feeling a little more positive, I think. I'm having the hardest time coming up with things to blog about lately. Just feeling like I don't have much to say. (Which will totally be negated by this post because I now have a lot to say.)
We did end up going out of town for a day. It was so nice to get away and be in a hotel for a night. Sometimes I just need to be somewhere different, you know? We were able to relax, hang out in the pool, shop a bit and relax (I guess I said that already, but it's doubly true!)
We had dinner at one of our favorite restaurants. They have a seasonal menu with locally grown food and I love the fact that I never know what special vegetarian entree they'll have. It's always SO good. We always check out the dessert counter before we are seated because they have a bakery as well and their desserts are incredible. So, we had incredible food and then an awesome rhubarb crisp. Making me drool just thinking about it all!
Anyway, the real point of all of this is that Friday we went to our consultation appointment with Dr. Smiles. He was running almost an hour behind so we sat in the waiting room for a while. At one point, a couple came in with 19-month-old twins and said they wanted to show them off to Dr. Smiles and the embryologist. It turns out they had been trying for 17 years (SEVENTEEN YEARS) and got pregnant through IVF with Dr. Smiles. Usually, I hate seeing babies at the RE's office, but this was really touching. These kids were adorable and sweet and Dr. Smiles came out and was so happy to see them. The nurses were so excited and the embryologist was, too. They said to their kids "she made you!" And I almost started to cry in a totally different way than I expected to. The embryologist (who they called "The Mixmaster" and who I will never be able to think of any other way again) is 9 months pregnant with her first. Dr. Smiles' wife just had a baby by IVF (their fourth IVF after years of secondary IF and 5 miscarriages). It was beautiful and touching. I was surprised by my reaction. It actually made me feel happy and inspired -- which is unusual for me.
We talked for a while with Dr. Smiles about our past cycles and next steps. He said "there are three things needed for a successful pregnancy -- good sperm, good eggs and a good uterus. I'm sure you have good sperm, after the lap, I'm sure you have a good uterus and tubes. We just don't know about the eggs." He's happy with how my IUI cycles have gone. And, it was good to know that he, too, was a little nervous the last time about triplet possibilities but he factored in my age before allowing us to go forward. It's nice to know that he tweaks drug amounts, etc. and actually thinks about each patient. I really do feel like he cares about us even if we're only one couple among hundreds.
So, essentially, it's time to make a decision. He wasn't pushing IVF and does think we could be successful with IUI. But, he also thinks IVF might be a good way to go. It's also tough for us to continue putting $2000 a month into something that has a poor success rate and, at the same time, has higher risk. I respond really well to the meds -- that's a good thing and makes him feel like he could get lots of eggs if we did IVF. He thinks, with quality embryos, we'd have an excellent chance at IVF working with either a fresh cycle or FET. But, we have no idea what my eggs really look like.
And, I talked to him about my timing worries -- essentially we have to accept that we will only ever be able to cycle every other month. And, he understands my stress about the school year starting. He thinks that we could possibly get into a July IVF cycle and, if not, definitely August. Either would give us a chance to get an entire cycle in before the school year starts. That would be ideal.
We also talked with the finance person. Basically, their cycles are about $9200 plus meds (estimated around $2500). Any FETs are about $2000. They don't have a shared risk or warranty plan. That's what we're going to have to compare to the Iowa program (Carpenter asked where it was -- it is the University of Iowa program). I know my DH is hesitant about NOT going with a shared risk program. But, personally, I'd really rather stay where we are. I like Dr. Smiles and his staff. I trust Dr. Smiles and his staff. I would only have to drive 3 hours round trip not 6 hours. If we decide to do IVF, we'd get in before the summer ends. I'm guessing it will take two months to even get an appointment at the other clinic -- I'd probably have to take two weeks off of work if we cycled in Iowa during the school year. That's REALLY not practical.
(One random thing to consider -- it appears the embryologist is about to go on maternity leave!! I assume they've got someone else to cover, but that is a little scary.)
I think my DH would be fine with just continuing IUI. Part of me is, too. But, part of me finds it scary and risky with very little probability of reward. It's "easy," though, you know? He said something about doing it three more times (knowing that would take us 6 months) because the statistics say that it has a decent chance of working at that point. But, it also has a decent chance of not working and then we're out another $6000 that could have gone toward IVF which might even tell us that I have crap eggs and this whole thing was a waste.
I don't know, I think I'm kind of babbling. My thoughts are not organized at all. I just keep going back and forth. We need to look at the "Iowa Warranty" program at the UI again and think about timing and make some decisions.
I feel like I'm ready to move on. I also feel scared shitless to do so.
Lots of big decisions! I think I would put the $6000 towards IVF so you know what your eggs are like, but I'm a bit of a control freak! Haha! I hope you find some clarity to make your decision!
ReplyDelete17 years? Wow! That is an amazing story!
It's a tough decision, but I second Dawn and say that the money would go along way to IVF. Good luck with your decision!! Dr Smiles and Mixmaster sound awesome!!
ReplyDeleteMoving to IVF is scary because it seems like it's the last treatment to try, the end of the road. After having started IVF, there's no other treatment to think about in a hopeful sort of way, beyond more of the same.
ReplyDeleteThe Shared Risk cycles -- we thought about it a lot and in the end decided not to, in that one IVF and a FET or two were less than the either of the shared risk plans offered by our clinic. The shared risk plan would only have been worth it if we were pretty sure that we'd need more than one fresh IVF cycle... and if our prognosis were such that we were actually expecting to need a second cycle, I'm not sure we would have been eligible for it at all.
Talk to Dr Smiles and company about what your success rates are, considering what is the probability that your first IVF would be sufficient to get you to a take-home baby, either through the fresh transfer or a FET.
In the end, our IVF cycle produced a lot of embryos, and the first FET worked, so we made a good decision in hindsight. But, it did feel very very scary and filled with hubris to say "No, I am expecting this to work on the first try." Because nothing had been working as it was supposed to on this journey thus far, after all.
The choice move from IUI to IVF is, I imagine, a scary one to make. We never had to make that choice, as our first IUI was cancelled due to over-response and the second due to...Christmas. And then once we got the information about our genetic disease carrier status, IVF seemed the only option we were comfortable with. Of course, now, even after IVF, we're looking at having to do the same early testing and potentially make the same heartbreaking choices as if we'd done IUI, since we didn't do PGD on our embryos this cycle...but I digress. I guess I would say that, cost aside (and how on earth does one put cost aside, but if you can for a moment), having done from Clomid and timed intercourse to IVF, it didn't end up being as scary as I thought it would be. The anticipation, as it so often is, was far worse. I hope you all are able to come to a decision together that feels right and like a step forward. Sending hugs and love.
ReplyDelete*gone from* Clomid to IVF, not done from...
ReplyDeleteThis is one of the hardest decisions on this journey. There are so many things to factor, so it's scary at first. Once we got on that road, we got some relief and we found new hope. It was in a way empowering.
ReplyDeleteI agree with others regarding the shared risk program. With your response to the treatments and with all the other factors your odds are very good for early success at IVF (like Dr. Smiles has said at as well). I think shared risk programs are more for patients with severe IF factors and little chance for success. I remember wildly researching the same options, and looking back, we spent less on our 2 cycles than we would have spent on the shared risk.
I hope you get all the answers soon which you still need to make this decision, so you could come up with a great plan for this summer.
Cheering for you guys as always!
The decisions associated with IF can be as difficult as dealing with BFN's.....I think putting the $ toward IVF and being able to evaluate the eggs would be beneficial. Also, the cost is pretty good compared to most clinics at $12,000 plus meds. Follow your gut....
ReplyDeleteThis is such a hard decision. It seems like such a big step, but it sounds like you're getting ready for it. The money thing is tough, but it's more bang for your buck, so to speak. You need to be comfortable with the clinic and the docs, no matter which direction you go. Thinking of you as you weigh all your options!
ReplyDeleteI can relate so much to the position that you are in. Finances, timing over the summer, IUI vs. IVF, everything. Iowa has a great program. I'd consider it myself, however after being there for 8 years of college I'd rather not run the risk of running into a bunch of people I know, and it would be around 8 hours round trip for us. We are currently looking into IVF options in Europe. Much farther than Iowa, yes, but also much less expensive. It's a hard step to take. I am sure that whatever decision you both make will be the right one. Good luck!
ReplyDeleteThis is definitely a tough choice - no doubt about it. I certainly can't tell you what to do (only you know the right option for yourself), but I know that when we stopped IUIs, it was because of the odds. I couldn't see spending money every month on something with such low odds. Trust me - continuing with IUIs rather than pursuing domestic adoption would have saved us a ton of money. But, in the end, we made the best decision to ensure we would have a child sooner rather than later. Which is really all I cared about.
ReplyDeleteBest of luck making the choice. Regardless of what path you follow, you know all of us will be here to root for you!
Oh man, if this comment doesn't make it I am going to scream! Blogger has been really screwing with my ability to comment, grrr! My question is, what scares you? It sounds like all the other commenters get you fear and I do too bit I want to know what it is that is so scary before I would attempt to render ass-vice. It is a bigger step but the success rates are higher and it would enable you to learn more about egg quality. No matter your choice, I support you. I hope you reach a decision soon that feels right.
ReplyDeleteXoxo
Man I typed out this huge response and it vaporized...GRR! Ok, here it goes again.
ReplyDeleteThat is such a touching story about the twins =) And it's great that it made you feel hopeful!
Making the leap from IUI to IVF is such a hard call. I remember wishing there was some "right" answer but unfortunatly there's not and you just have to search your heart and figure out what is right for you. If I were in your position I'd probably make the jump to IVF with your current doc. You trust him which is invaluble and the fact that you could watch your eggs in a dish for 3-5 days to ensure you were getting quality ones put back in just makes your chances so much greater.
On the cost side of things, my RE charges $15k per cycle plus meds and ICSI. Our shared risk was $29k and included ICSI but meds were still on top of that. From my research that was a pretty standard cost. So really you could do the 3 fresh cycles at your RE for what the shared risk would cost. The liklihood of you needing to do all three fresh cycles is low. It was nice to pay upfront and know you had all the chances but it'll also be nice to save the extra $$ if it works on the 1st shot *fingers crossed*
GL making the right decision for you...I know it take a lot of soul searching!
So many decisions! I can see why your thoughts are swimming around! I think I would want to try the IVF if for no other reason than it seems the quickest way to your baby!
ReplyDeleteBTW, we decided to do the shared risk because they thought I was boarderline DOR and were worried about my response to stimulation. So we figured we'd be doing at least 2 IVF cycles....but in the end #1 worked like a charm and we would have saved a lot of money on not doing the shared risk...my crystal ball was clearly broken ;-)
ReplyDeleteI've imagined being in this position many times, but never had to go through it. This must be incredibly hard to figure out. I can completely see both sides of the coin. I do hope you come to a decision you feel comfortable with really soon.
ReplyDeleteYEah, the IUI vs IVF decision is a tough one. We ultimately skipped right over IUI because I responded well to the drugs and we didn't want multiples, and the success rates with IVF were higher, so we figured we'd get to our goal (baby) faster that way. It sounds like you have a great clinic and a really great RE, and I'm sure that you and DH will come to a decision that feels right for you. I'm wishing you tons and tons of luck and thinking of you!
ReplyDelete