My husband and I have a new set of "couple friends" who we've never met. Well, sort of. They are the friends of another set of couple friends. (That's just confusing.) Anyway, we knew some months ago that they were expecting twins. Somehow, though, it wasn't until about two weeks ago that my DH reached out to the wife of the pair. Turns out she was already 38 weeks pregnant and had been hanging around, waiting for the babies after having taken the semester off since everyone said "they'll come early." My DH offered us up for advice, recommendations, etc., and she wrote back with questions. We invited them over and joked that they'd likely end up not making it on the day we'd planned because she'd go into labor...which, is, of course, exactly what happened two days before our "date"!
So, we still haven't met them but my DH and K (the mom) have been e-mailing back and forth. I think she's using him as a sounding board and my DH loves to be able to share his expertise. (Where I'd feel like I was imposing, he's always into sharing.) I feel like I've gotten to know her, too, even though we've never even e-mailed much less spoken. So, yeah, it's kind of a weird situation at the moment. But, we're giving them a few hand-me-down things that we're going to drop off at some point along with a few "Twin Tested Toys" and I'm hoping that we'll have a great new set of twin parent friends that our kids can also get to know as they're all bigger (and the 10 month difference becomes less meaningful).
After the parents come back up from the underwater feeling of the first few months of newborn twins, that is.
What does this have to do with "identity"? I've been trying to decide what has had the most impact on how I feel as a mother -- mom after infertility, mom of twins, mom of preemies, working mom, older mom, etc.
I mean, obviously, all of those things are true and have influenced me. But, I feel like one stands out from the rest -- mom of preemies. How these kids came about is huge -- IF, IVF, years of anxiety. And, the fact that there are two of them is huge -- holy crap on a cracker is it insane (happy, but insane). But, the preemie thing and the NICU experience are things that, even at 10 months old, I think about every day.
When we talk to other parents of preemies, there's an instant understanding. We had dinner with a woman whose daughter was born somewhere in the 26 week range -- nearly 40 years ago. (She was told by a nurse not to expect her to talk or develop normally. Yeah, the daughter has an Ivy League Ph.D. Take that obnoxious nurse.) We bonded completely with the parents and talked about changes in the NICU experience, etc. And, it's happened SO many times in the last 10 months. From colleagues who came to see us at the NICU to share their experiences with their kids who are now 15, 18, 24, 30, even 50 to friends and family who have come out of the woodwork talking about their fears of RSV and developmental worries, etc., that we never knew.
(And, we're so lucky that our boys were only in the NICU for 50 days and had so few medical issues other than just needing to grow out of the breathing problems -- 50 days seems like a long time but we've known so many who were there for 100 days or longer. It's hard to imagine.)
It's all come home recently, though, while we (and by "we" I mean "my husband") talk to K about her twins. Yeah, she and her husband are overwhelmed and exhausted. Yeah, she's trying to figure out if tandem nursing will work and how to work in "shifts" to get through the night. And, the "twin thing" will always be a big connection there. But, I hadn't realized how much of our "twin thing" is really our "twin preemie thing."
She actually got to room in with her babies. They were allowed to co-bed them (our particular NICU was against that sort of thing and we rarely were able to get the boys together until we took them home). Family and friends got to visit her in the hospital with her babies. They brought the babies home when she checked out. Her babies weren't taken away from her not to be seen again for 36 hours. She didn't have to wait three days before holding her children for the first time. She didn't have to wait for a month before trying to nurse her babies. She didn't spend weeks pumping alone in the dark in a musty smelling dorm room playing a video on her phone of her son crying over and over again and burying her nose in blankets the nurse had wrapped the babies in for a few hours in a desperate attempt to trigger some sort of pheromone response that would increase her milk supply and make her feel like a mother.
I'm not claiming "whoa is me" here or "look what I've been through." It's just that I've realized that our experience was just SO different. I know it sounds funny to say it, but I hadn't totally realized that.
While I think about my infertility and IVF and injections and doctor's appointments and all the months of trying and anxiety and depression occasionally, mostly it is as a wistful background thought that is dashed when I look at the boys. But, I can't stop thinking about the early bleeding and stressful pregnancy and premature labor and the days in the NICU and giving S CPR and dealing with apnea monitors and feeding the boys with the lights on at 3 am so we could see if they turned blue and blowing on their faces to remind them to breathe while they were eating.
It's not like I obsess over these things -- though I'll admit I've been known to do so. It's just that I feel like all of those things have had such an influence on who I am as a mom -- sometimes positive, sometimes negative. We missed out on some things. When people describe the sweet bonding feeling of feeding their newborns, I remember the first time I was alone with S after he was released from the hospital the second time while my DH was visiting D at the NICU. I actually had to stop and breathe for him every few minutes while I was feeding him since he kept forgetting. I hadn't yet learned how to work with him during a meal so that he wouldn't get to the point where he'd completely stop. Every meal took an act of courage on my part and ended in tears. I was scared to death.
It's hard to forget that, you know? When people wonder why we seem overprotective of the boys right now -- we don't really take them out much and we are keeping the hand sanitizer companies in business -- we think "it's RSV season and we are NOT going back to the hospital." They kind of roll their eyes but I've already seen both of my children struggle to breathe. I don't want to do it again.
When I'm stressed about developmental milestones and weight gain people say "all babies are different" but I can't help wonder what I could have done to keep the boys "in" longer and give them a better chance.
When people say "wow, can't believe you're still pumping, that's kind of crazy" I know that it is something I NEED to do for myself and the boys. Sometimes I feel like some of the disconnect I had from the boys when they were in the hospital is still there. Feeding them something from my own body -- even if it isn't directly from my body -- makes me feel like the connection is still there.
Don't get me wrong -- the boys are doing really well. They're mostly on track for their adjusted age. They're doing the things they're supposed to do. They're a bit small but healthy. Other than the helmets, they don't look any different from normal kids. If you saw them out and about you wouldn't have any idea they came so early. By all accounts, their prematurity will likely have minimal influence on them as they grow up.
But, me? It's had a huge impact on me.
| The boys at 1 day and 10 months -- D on top, S on bottom |
I really feel you on this topic! Sometimes I wonder how much differently I would parent if we had not had the beginning that we had. It's impossible to know I guess. Although our girls were in the nicu only 22 days, I feel like it set the stage in so many ways. From the impact it had on breastfeeding to the trauma of watching your children stop breathing in your arms. For the first year I thought about it (their prematurity, the nicu, the fear) all so much. Every day. After the girls hit one year, and then 18 months, and now at 21... I think about it so much less. It's not that I want to forget it, it will always be a part of their story, and probably will always influence how I parent, but its nice to not have it weigh on me quite so much. I hope that your experience will settle as the time goes by, and that you'll find yourself in a place of peace with it all (if you're not already). Big stuff, big stuff...
ReplyDeleteAnd this must be said: LOOK AT THOSE HUGE BOYS! HUGE AND *ADORABLE*. Sorry, the all caps was necessary for that. They are just ridiculously cute. Look at those impish grins, how much trouble are you going to be in once they're full-on toddlers!? ;)
Aw thanks! :) And, seriously, mobility terrifies us...
DeleteAnd, you're right, everyday I feel better about it and less of an impact. I feel like the big change may hit when we hit the adjusted one year mark.
I honestly can't even imagine. I'm one of those ignorant parents of all that you've had to endure with preemie twins. You have been such rock through it all and I hope you stop to pat yourself on the back now and then. Happy you can share some advice with new parents of twins but I totally understand how they will be ignorant of part of what you've been through too.
ReplyDeleteActually, K said to my DH "you were so strong" when she was looking at some of our early pictures and it made us think "huh, I guess so." The truth is that you just "are" because you have to be. It's only when you realize that your situation was really not the "norm" that you think back to how hard it was, I think.
DeleteThe boys are getting so big! I can't believe they'll be a year soon!
ReplyDeleteI have always counted my blessings that our boys made it to nearly 36 weeks and came home with us. I hope that time will help ease those painful memories.
I was panicked with a newborn and RSV season. I can't even imagine how having preemies would make you feel. Screw those people who roll their eyes!
I know -- how on earth has a year gone by?!
DeleteIt's funny, I never had even heard of RSV until a few years ago! We keep hearing stories of full term babies in the hospital with it recently, too. Scary.
I can relate oh so very much to this post. While I can connect to triplet moms, and I can connect to IVF moms, I connect almost instantaneously with other preemie moms. And sad to say, the earlier, the better. It's not that I can't connect to a mom of a baby born at 35-36 weeks, but it is just a completely different journey than a 25 weeker, like mine are.
ReplyDeleteMine just turned a year and I still think about the NICU every day. I still think about the time I watched Grace desat to ONE (holy shit scary). While other moms are stressing over why their baby isn't saying "mama" as their first word, I'm left wondering if mine will even talk at all, or if their brain hemmorhages will leave them non-verbal. It's a completely different mindset, and I don't think that anyone other than a preemie mom can understand.
And, like you, it totally isn't a "look at what I've been through" thing, but it is a "please acknowledge that our journies are different" thing. Because, by acknowledging that our journies have been very different than the "normal" parent, maybe others can understand why we douse them in sanitizer the moment they walk in the door! :)
You aren't alone in this. I am an IVF mama. I'm an infertile mama. I'm a triplet mama. But most of all, I'm a preemie mama. Just like you :)
It's still hard, sometimes, to feed S without thinking about the panic when he turned blue and limp and we had to give him CPR. And, I can still hear the exact pattern of the de-sat warning bells without even trying.
DeleteIt is amazing that every week earlier makes so much of a difference, too. We were at 31 weeks which felt early but they seemed so huge when we were at the NICU and saw some of the earlier babies. Or when I think about my cousin's triplets at 27 weeks or yours at 25 or a friend's singleton who was the first 23 weeker to survive at the hospital he was born in -- he's now an 19 year old college freshman.
It really is a "not normal" world.
Happy birthday to yours!! They're adorable!
This completely resonates with me. One of my friends recently had a baby and I've been mourning the loss of that normal experience that I see her glowing from. The family photo in the hospital - we didn't get a family photo until they were 2 months old. Or that last pregnancy picture days before their birth. The pregnancy and early birth have had the biggest impact on me as well. I constantly worry about their development. Are there things we don't know about yet? How did the NICU affect them - the beeps, the sticks in their teeny feet, not being with them enough...
ReplyDeleteThat's great you've met some people with twins. I feel like there's a special bond in that. But you're right. Preemie twins are yet a whole different breed. We met with an early intervention specialist and that was one thing she said that stuck with me. Preemies are different than corrected age full term babies so you can't even compare.
Thanks for writing this. It was nice to hear someone else express a lot of what I have been feeling lately.
And, it is nice to have others to share these experiences with -- even if not "in real life."
DeleteWe've been very glad to have the developmental specialist follow-up appointments. They've helped us realize that we are thinking the right way and have given us reassurance about the boys. You're right, there's just SO much that we still don't know. It scares me sometimes. I try to stay positive and know that we've dealt with plenty and we'll deal with it all as it comes. But, it can be hard.
I feel like I could have written this. Identity, especially as a mother, has so many facets. I am (now that my babies are older) starting to feel like more of a "twin mom" than a "preemie mom."
ReplyDeleteI do think you will find ways to bond, even with so many differences there are common things that will bring you together.
As a preemie parent, the difference was usually gestation, but even there- no two babies are alike, so while we all had a general understanding of having a sick baby- my 34 weekers were struggling just as much as some younger babies and there were term babies struggling more. Same with my 31 weekers.
I'm involved in my local multiples club, and it's been a great place to get support and hang out with other women who "get it" both as mothers of multiples (and many of them, as mothers of preemies).
I hope your friendship blossoms. I do think after the first few months, they will be out of the zombie phase and more likely to have time to hang out.
When we chatted with other NICU parents at the hospital, it used to seem that while everyone's experiences were totally different, they were also exactly the same. There were sick term babies and healthy early tiny babies and sick early babies. But, all of us were scared and feeling isolated and watching the monitors and trying to understand what the doctors were telling us and living day to day. While length of time at the NICU changed how you felt about the process, we all understood how it felt when you first got there.
DeleteI do look forward to having time to bond with these parents.
Your post took the words right out my mouth. We have spent the first 11 months of their lives not letting them out of our sight - literally. After coming home from the NICU, they would have unexpected choking spells that required our assistance to come out of. Until you have watched your child turn blue in your arms, I think it is hard to understand. And, the lack of breastfeeding was devastating to me. Kudos to you for continuing to pump - I only made it to 7 months. I was just too tired to keep going. Our boys must be just a couple of weeks apart - they were 32 weekers and born in April too... Thanks for your post!
ReplyDeleteAmazing that our boys must be so close!
DeleteIt has taken great acts of strength for us to finally have the boys sleeping in their own room. It wasn't until a month ago that one of us wasn't always at arms distance from them. One of these days I won't feel the need to put my hand on their chests in the middle of the night to make sure they're still breathing. I'm sure that a lot of "normal" parents still feel that way, too, but it takes on new significance, I think.
First of all, the boys are incredibly adorable! those cheeky smiles tell me they have super adorable personalities as well:) How very cute!
ReplyDelete***
What you had been going through leading up to and through the pregnancy, then with all the trauma in the NICU is a major life- and personality changing experience. It's ok to be overprotective. It's ok to live your days the way it makes you feel reassured and safe. The trauma and all those memories are still too fresh behind you. And healing is a long way.
You are doing fantastic with the boys and I am so proud of you! I am sorry about the gaps in communications, but know that I am thinking of you often, my forever-Twinnie.
I don't understand the preemie experience or even the twin experience but I totally get the connecting with others of the same experience thing because I naturally feel an easier connection with donor egg mums. Empathy plays a huge role but I can't imagine how hard those weeks and months in the NICU must be for mums such as yourself. I imagine that it is horrifyingly traumatic but unless you've gone through it, there is no intimate knowledge of the horror. Great post, thought provoking, we all have our labels.
ReplyDeleteHere via PAIL. I can so totally relate to this post as I have been thinking about "where I belong" for quite some time now. For me (us), preemie parent still describes me (us). Part of that is because we were not so lucky to have left the complications/risks of prematurity behind us as our boys aged, but it is also in part because the 100 days they spent in the NICU have truly left their mark on us as a family.
ReplyDeleteWe're 5 years out from the NICU. In some ways it seems like it was a lifetime ago. In other ways, it was just yesterday.
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